Philosophy and objectives
Immediately after the frightening diagnosis "Your child has a congenital heart defect", parents are bewildered and at a loss.
This news is a great shock. Parents feel helpless and overwhelmed. Desperation, fear and feelings of guilt set in.
"Who do I turn to?"
"Where can I find more information about my child's heart defect?"
"How can I help my child?"
... and many more questions need to be answered.
We would like to help the parents of heart children to find answers to these questions.
Because we know from our own experience how difficult life suddenly becomes when you can hardly find time to breathe between a stay in hospital and your everyday obligations.
We know what it means to ask yourself: "Why of all people should my child have a congenital heart defect?"
We are the contact point for all non-medical concerns and interests.
Parents of heart children can find support, advice and assistance here, and can share experiences with other heart parents. For those seeking advice, we gather specific, detailed information, establish contacts, and listen when they want to pour their hearts out.
We organise a range of activities such as heart children events, summer weeks for heart families, holiday camps for heart children and their siblings, GUCH weekends, parent weekends (mum, dad, bereaved parents), charity events, walks, excursions and of course information evenings, discussion groups and lectures.
Herzkinder sind noch viel mehr...
Viele unserer Ideen möchten verwirklicht werden! Dazu brauchen wir aber Deine Unterstützung, denn Veranstaltungen müssen geplant und organisiert werden und für viele Dinge müssen auch wir bezahlen.
